Friday November 22, 2019

Human rights group calls for genetic data firm probe

GMI, which was founded in 2015, was acquired last year by Chinese-owned WuXi NextCode. The firm aims to harvest genetic data from 400,000 Irish people for medical research

By Killian Woods

Business reporter


By Barry J Whyte

Chief Feature Writer

18th August, 2019

A prominent human rights group has said that the genetic data harvesting firm Genomics Medicine Ireland (GMI) should cease collecting medical data and be subject to a full investigation by the Data Protection Commission (DPC).

Elizabeth Farries, information rights programme manager for the Irish Council for Civil Liberties (ICCL), told this newspaper that it was “alarmed” that GMI has expressed confusion regarding its basic obligations under EU and domestic data protection and privacy laws....

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