Friday July 10, 2020

Fighting the good fight

When Tony and Mary Heffernan found their two children had a rare terminal disease, the couple set about raising the sizeable funds required to participate in a pioneering US medical trial

Susan Mitchell

Deputy Editor and Health Editor

29th May, 2010

Tony Heffernan clearly recalls the exact moment his family’s life changed forever. He was sitting in Temple Street Hospital with his wife, Mary. ‘‘On December 21, at a quarter to one, Dr Lynch told us our girl had Batten disease,” Heffernan says.

It is a rarely spoken of condition, but Heffernan knew what it meant. He had looked it up on the internet some hours earlier, having heard doctors mention the...

Subscribe from just €1 for the first month!

Exclusive offers:

All Digital Access + eReader



Unlimited Access for 1 Month

Then €19.99 a month after the offer period.

Get basic
*New subscribers only
You can cancel any time.



€149 For the 1st Year

Unlimited Access for 1 Year

You can cancel any time.




90 Day Pass

You can cancel any time.

Team Pass

Get a Business Account for you and your team

Share this post

Related Stories

The best writing and and the biggest stories of 2019 from the Business Post

Richie Oakley | 6 months ago

Denis O’Brien is back in court, residents continue to fight the Council on halting site and a row surfaces in government over rent control proposals

Leanna Byrne | 4 years ago