War of words over consent on gene data

A Chinese-backed Irish company’s plans to harvest the genetic data of half a million Irish people is threatened by stringent new European rules

Barry J Whyte

Chief Feature Writer @whytebarry
30th June, 2019
Peter Lennon of the Department of Health on his meeting with GMI in October 2018; a letter from Muiris O’Connor (Department of Health) to Anne Jones of GMI; minutes of a March meeting between the department and GMI

Dr Anne Jones, the chief executive of Genomics Medicine Ireland (GMI), a Chinese-backed company looking to harvest the genetic data of nearly half a million Irish people, has had a baptism of fire since she was appointed in November 2018.

For nearly a year, GMI - which has been backed by the Irish state, Chinese investors WuXi AppTec, and Google - has been involved in frantic efforts to preserve its enormous database of genetic material ahead...

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