Human rights group calls for genetic data firm probe

GMI, which was founded in 2015, was acquired last year by Chinese-owned WuXi NextCode. The firm aims to harvest genetic data from 400,000 Irish people for medical research

Barry J Whyte

Chief Feature Writer @whytebarry
18th August, 2019

A prominent human rights group has said that the genetic data harvesting firm Genomics Medicine Ireland (GMI) should cease collecting medical data and be subject to a full investigation by the Data Protection Commission (DPC).

Elizabeth Farries, information rights programme manager for the Irish Council for Civil Liberties (ICCL), told this newspaper that it was “alarmed” that GMI has expressed confusion regarding its basic obligations under EU and domestic data protection and privacy laws....

Subscribe from just €1 for the first month!


What's Included

With any subscription you will have access to

  • 971569B3-2C5E-4C45-B798-CEADE16987A8

    Unlimited multi-device access to our iPad, iPhone and Android Apps

  • 099C8662-C57C-42F2-9426-F2F90DF17C8F

    Unlimited access to our eReader library

  • 198AE43B-B9CF-4892-8769-D63C2104BA08

    Exclusive daily insight and opinion seven days a week

  • D8F37B78-25E4-4E4A-A376-4F5789B1564A

    Create alerts to never miss a subject that matters to you

  • B15F2521-37CD-4E02-B898-730A20D39F7F

    Get access to exclusive offers for subscribers on gifts and experiences

  • A564FE02-1AB8-4579-AF9D-BA32A2E5ACA7

    Get content from Business Post, Business Post Magazines, Connected, Tatler and Food & Wine

Share this post

Related Stories

Four key developments in the row over ownership of the National Maternity Hospital site

A quarter of HSE’s IT servers are still encrypted after cyberattack

Consultants call for ‘meaningful’ talks over Sláintecare contract

Health Daniel Murray 3 days ago

Updated costs on new children’s hospital cannot be released, says Watt

Health Donal MacNamee 1 week ago