Thursday July 9, 2020

HSE has given patient advocacy groups €35m. What do they do for it?

There is concern at the lack of transparency shown by some organisations that receive state funding to represent patients

Aaron Rogan

News Correspondent

4th August, 2019
Shining a light: on what patient advocacy groups do and how they are funded

The HSE has spent almost €35 million on funding dedicated patient advocacy groups in the last decade, but there is a lack of clarity around what exactly some groups do for the money they get, with a number failing to produce accounts or annual reports.

The collapse of Patient Focus last year over governance issues raised interest in how the sector operates, but has not resulted in improved transparency across the board.

One source within...

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