Monday July 13, 2020

HSE begins talks on CF drug Orkambi

News relief to patients with cystic fibrosis and families

Susan Mitchell

Deputy Editor and Health Editor

@susmitchellsbp
28th August, 2016
Cystic fibrosis drug Orkambi

Negotiations between the state and the manufacturer of cystic fibrosis drug Orkambi have finally begun.

The news will be a relief to patients with cystic fibrosis and their families, who had begun to question why the health service had yet to decide whether it would seek to provide the drug – at a cost of €160,000 per patient per year.

The National Centre for Pharmacoeconomics (NCPE) recommended against funding the drug in June, but that...

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