Government to make decision on Cystic Fibrosis medicine Orkambi

HSE management is to consider a proposal from the drug’s manufacturer, Vertex Pharmaceuticals

5th February, 2017

Ministers are to decide on the affordability of cystic fibrosis drug Orkambi this month.

HSE management is to consider a proposal from the drug’s manufacturer, Vertex Pharmaceuticals, in coming weeks after a previous offer was deemed too expensive to fund.

The company had demanded €159,000 per patient, per year, which would cost the HSE €391 million over five years.

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