Genes for sale: the harvesting of Irish genetic data

Genes for sale: the harvesting of Irish genetic data

Other states have statutory bodies that oversee their national genomics medicines programmes, but not Ireland. For the first time we can reveal the extent of the harvesting of Irish genetic data by for-profit company Genuity which has dozens of link ups with Irish hospitals, universities and health organisations

Barry J Whyte

Chief Feature Writer @whytebarry
4th October, 2020

In the middle of last year, Simon Harris got a striking lesson on Ireland’s place in the genomics medicine revolution.

It came during a discussion with Baroness Blackwood, the Under Secretary of State for Health in Britain, on the potential for collaboration between the two jurisdictions.

Such discussions make sense given this technology allows researchers the ability to gather large volumes of genetic data and, from them, derive new diagnostic tools and new...

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