Saturday December 7, 2019

Cancer charity meets with health office over GMI data controversy

Irish Cancer Society investigating whether patient data was shared with genetic data collection firm without consent

Killian Woods

Business reporter

@killianwoods

Barry J Whyte

Chief Feature Writer

@whytebarry
1st December, 2019
GMI is financially backed and owned by Chinese investors and the Irish state. It aims to collect genetic data from 400,000 Irish people to create a large genetic portrait of the population.

A leading charity has met health officials to express concern that patient data might have been shared with Genomics Medicine Ireland (GMI) without the proper consent, the Business Post has learned.

The Irish Cancer Society told the Business Post that it met with the Department of Health in September after it was contacted by a number of cancer patient advocates. Those advocates, a Cancer Society spokeswoman said, had expressed concern “that patient data may have...

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