200 brain tumour patients request exclusion from research study

Beaumont Hospital receives requests from patients to opt out of study that aims to harvest genetic data of 9,000 brain tumour patients

Barry J Whyte

Chief Feature Writer @whytebarry
20th September, 2020
200 brain tumour patients request exclusion from research study
Nearly 200 requests from patients to opt-out of a research study that aims to harvest the genetic data of 9,000 Irish brain tumour patients

Beaumont Hospital has received nearly 200 requests from patients to opt-out of a research study that aims to harvest the genetic data of 9,000 Irish brain tumour patients, the Business Post can reveal.

The study is being run in conjunction with Genuity Ireland, formerly known as Genomics Medicine Ireland (GMI), and was initially refused permission by the state’s Health Research Consent Declaration Committee (HRCDC) over concerns about the “low level of transparency” attached to the...

Subscribe from just €1 for the first month!

Currency

What's Included

With any subscription you will have access to

  • 971569B3-2C5E-4C45-B798-CEADE16987A8

    Unlimited multi-device access to our iPad, iPhone and Android Apps

  • 099C8662-C57C-42F2-9426-F2F90DF17C8F

    Unlimited access to our eReader library

  • 198AE43B-B9CF-4892-8769-D63C2104BA08

    Exclusive daily insight and opinion seven days a week

  • D8F37B78-25E4-4E4A-A376-4F5789B1564A

    Create alerts to never miss a subject that matters to you

  • B15F2521-37CD-4E02-B898-730A20D39F7F

    Get access to exclusive offers for subscribers on gifts and experiences

  • A564FE02-1AB8-4579-AF9D-BA32A2E5ACA7

    Get content from Business Post, Business Post Magazines, Connected, Tatler and Food & Wine

Share this post

Related Stories

Covid-19: India’s crisis brings vaccine access inequality into sharp focus

Health Rachel Lavin 4 days ago

Amnesty chief calls state’s position on vaccine rights waiver ‘oxymoronic’

Health Donal MacNamee 1 week ago

Pharma giant Roche hopes to bring cervical self-sampling tests in Ireland

Health Daniel Murray 1 week ago

Analysis: Watt’s waiving of pay rise gets ministers off the hook – for now

Health Aiden Corkery 2 weeks ago