The Orkambi Buyers Club and the price of hope
Diarmaid McDonald is challenging the pharma establishment by delivering life-saving drugs to cystic fibrosis sufferers in the North and in Britain
In the 1980s, the Dallas Buyers Club became famous for smuggling illegal drugs to Aids patients in the US; it was later the subject of a blockbuster movie.
Now a buyers’ club set up by Irish man Diarmaid McDonald is at the forefront of a battle to give cystic fibrosis patients in the North of Ireland and Britain access to a potentially life-changing drug called Orkambi.
McDonald, who campaigns against what he regards ...